Remember Your Loved-One In a Special Way During National Creutzfeldt-Jakob Disease Awareness Week
September 21, 2009 (PRLEAP.COM) Health NewsCJD Aware! will post their annual Remembrance Page on their website in observance of National CJD Awareness Week and International CJD Awareness Day (November 12th).
"In addition to our Remembrance Page, we encourage those who have lost a loved-one to this disease do something special that week in memory of them," remarked Kim Kincaid, a new CJD Aware! volunteer. "If that individual had a favorite restaurant, go have a meal there, perhaps wear their favorite color or rent their favorite movie and watch it all day, If they enjoyed walking or some sport, do that, " added Ms. Kincaid.
Each year, CJD Aware! adds one or more names to their annual Remembrance Page that they post during National CJD Awareness Week/International CJD Awareness Day on their website. International CJD Awareness Day is the brainchild of Gillian Turner, coordinator of the CJD Support Group Network in Great Britain. Ms. Turner invited CJD support groups global-wide to join them by doing some special activity to promote CJD awareness in their community.
"This is one of our special projects we do each year," remarked Christy Brom, founder/director for CJD Aware!, a non-profit, online, information center for Creutzfeldt-Jakob disease based in New Orleans, Louisiana. "Gillian had a wonderful idea, and CJD Aware! is proud to be a participant each year for International CJD Awareness Day". Ms. Brom's mother, Sara P. Brom, was the victim of the sporadic form of CJD, she died on November 12th at the age of 65. "For National CJD Awareness Week, I'll be wearing one of my mother's favorite colors, turquoise," added Ms. Brom.
Creutzfeldt-Jakob disease (CJD) is a rare, neurodegenerative brain disease that is always fatal. There is no treatment or cure at this time. The disease has no boundaries, has been called the 'silent killer', and is probably the worst of the known dementias. CJD Aware! is taking names for their Remembrance Page, contact the office at firstname.lastname@example.org for information.