CJD Aware! Now Accepting Names For Their 'Remembrance Page'
August 16, 2007 (PRLEAP.COM) Health NewsIn observance of 'Creutzfeldt-Jakob Disease Awareness Week' (November 11-17, 2007), CJD Aware's! annual 'Remembrance Page' will be posted on their website
November 12. This marks an important day global-wide for many
countries…November 12 is International Creutzfeldt-Jacob Disease Awareness Day.
"International Creutzfeldt-Jakob Disease Awareness Day is the brainchild of Gillian Turner, coordinator for the CJD Support Group Network based in Great
Britain," remarked Christy Brom, the founder and director for CJD Aware!, a
non-profit, information organization for Creutzfeldt-Jakob disease (CJD). "In 2002, Gillian invited support groups global-wide to join the CJD Support Network in commemorating November 12 by arranging some group or community activity to raise awareness about Creutzfeldt-Jakob disease." commented Ms. Brom. CJD Aware! launched their 'Remembrance Page' last year on their website, and received wonderful feedback from it. "We will have a different format this year for the Remembrance Page," added Ms. Brom. "In addition to the loved-one's name, we just want the year they died, and the state (e.g. North Carolina, Louisiana, etc) where they died. The names from last year will again be posted on the Page, and the new names will be in bold-type." This information will be used solely for the Remembrance Page. "We had half of the United States represented on last year's Remembrance Page," remarked Sandy Rouse, a CJD Aware! volunteer, "We also had names from England and British Columbia too. We're expecting even more names this year." The Remembrance Page will be alphabetized by state and loved one's last name so viewers can find them easily.
Creutzfeldt-Jakob disease (CJD) is by all accounts a rare, fatal brain disorder that causes a multitude of symptoms that include dementia, personality changes and movement difficulties. It affects both men and women worldwide usually between the ages of 50-75. The only way to positively confirm a diagnosis
of CJD is an autopsy. There is no cure for CJD, the search for viable treatments continues to this day.